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양미란 ( Yang Mi-Ran ) - Gwangju Health University Department of Nursing
유미 ( Yu Mi ) - Gyeongsang National University College of Nursing
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Abstract
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Purpose: This study aimed to construct and test a predictive model that explains and predicts the quality of life in mothers of children with developmental disabilities (DB). The hypothesized model included severity of illness, distress, uncertainty, self-help, and parenting efficacy as influencing factors, quality of life (QOL) as a consequence based on the Braden’s Self-Help Model.
Methods: The data were collected using structured questionnaires through a direct and online surveys from 206 mothers of children with DB in 8 locations, including welfare centers for the disabled, developmental treatment centers, daycare centers for the disabled, local children's centers, and the parents' coalition for the disabled located in two provinces of Korea. Data were analysed using SPSS/WIN 23.0 and AMOS 21.0 program.
Results: The fit indices of the predictive model satisfied recommended levels; χ2=165.79(p<.001), normed χ²(χ²/df)=2.44, RMR=.04, RMSEA=.08, GFI=.90, AGFI=.85, NFI=.91, TLI=.93, CFI=.95. Among the variables, distress (β=-.46, p<.001), parenting efficacy (β=.22, p<.001), and self-help (β=.17, p=.018) had direct effects on QOL, and severity of illness(β=-.61, p=.010) and uncertainty(β=-.08, p=.014) showed indirect effects. The explanatory power of variables was 61.0%.
Conclusion: The applicability of Braden's Self-Help Model was confirmed, and these findings can provide a theoretical basis for improving the QOL in mothers of children with DB. Nursing intervention strategies that can relieve mothers’ distress and uncertainty related to disease and enhance parenting efficacy and self-help behavior should be considered.
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KeyWords
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발달장애, 자조행동, 질병의심각성, 삶의질, 불확실성
developmental disabilities, self-help groups, severity of illness index, quality of life, uncertainty
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원문 및 링크아웃 정보
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등재저널 정보
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